Check out this great YouTube video.
From co-producers Susan Grant, a Colorado-based FTD patient, and her caregiver Cindy Dilks, Planning for Hope captures some of the most brilliant and passionate researchers exploring early diagnoses for this rare disease, and looking for ways to differentiate Frontotemporal Disease from other dementias.
The documentary includes crucial discussion from business professionals on financial and estate planning, and heart-wrenching footage of families in a perpetual state of grieving amid financial struggles and the loved ones affected by frontotemporal disease.
“Susan Grant had always considered herself a fast thinker. She was a businesswoman with a successful financial planning practice and a head for numbers.
So in 2003, when she began to notice that “something wasn’t quite right in her brain,” she started the journey from doctor to doctor in what turned out to be a year of relentless pursuit to get a definitive diagnosis.
Armed with a diagnosis and renewed tenacity, Susan then set upon a mission to raise public awareness for Frontotemporal Disease.”
See more at HealthCentral.com
Neuroscience Research Australia explains FTD thus:
“Frontotemporal Dementia was first described over 100 years ago by Arnold Pick and is often referred to as Pick’s disease.
It is a cause of dementia, which is in some ways similar to Alzheimer’s disease, involving a progressive decline in a person’s mental powers over a number of years.
Both are what we call neurodegenerative disorders but because different regions of the brain are affected the symptom profile in FTD and Alzheimer’s disease are distinct, at least in the early stages.
See more at neura.edu.ca
To learn more, or to purchase a copy of this documentary, go to Susan’s and Cindy’s website, ftdplanning for hope.com